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Kociarik pre Emmuska- New Pram for Emma

Trvanie výzvy: 24. novembra 2012 - 24. novembra 2013

Cieľ výzvy

Novy Kociarik pre Emmku, ktora ma uz 7 rokov a nedokaze ani sama sediet. Tento kociar bude velkou pomocou pre nasu mamku, ktora sa o nu neustale stara.

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Kociarik pre Emmuska- New Pram for Emma

Novy kociarik pre Emmusku

Na odporucania lekarov sme zmenili typ kociara (vidite ho v linku po tymto napisom) Jeho cena je podstatne vyssia 3000 eur.

After high recommendations of the doctors we changed the type of the pram we need, please see the link bellow. Total price of the pram with all extras- hood,footmuf, etc is higher:3000 euros.

Kedze Emmuska je male dietatko v tele 7 rocneho dievcatka,potrebovali by sme pre nu novy kociarik, ktory si ale sami nemozeme dovolit. Vhodny kociar, ktory je lahky, stabilny s polohovatelnou opierkou.Chceli by sme Vas poprosit o podporu nakupu vhodneho kociara pre Emmku. Dakujeme Vam za pomoc.

Emma is now like a little baby in the body of 7 years old girl. We would like to ask you for your help and support of our family. Thank you for your kindness

http://www.e-pages.dk/r82/71/64/

Presne pred 7 rokmi sa mojim rodicom mal/a narodit treti/a syncek/dcerka,ocakavane dietatko nie len rodicmi, ale najma dvoma starsimi sestrami- Sisa vtedy 15r, Jana 19r.

Pocas bezproblemoveho tehotenstva sme babatko nazvali maly Aladar a takto sme sa k nemu aj so sestrou aj prihovarali:))) V 7mom mesiaci tehotenstva mamci lekarka povedala,ze ma vela plodovej vody, tak bola rizikovom tehotenstve. V 37 tyzdni tehotenstva sa lekarom na prehliadke nieco nepozdavalo, tak mamci vykonali cisarsky rez. Vsetci sme sa velmi tesili na nasho maleho anjelika...

No po porode sa naskytli komplikacie- tvrdili nam,ze mala Emmka ma nieco so srdieckom, potom tvrdili,ze ma nieco s traviacou sustavou a vylucovanim. Kazdych par hodin prichadzali s novymi diagnozami, ale nikto nevedel co jej presne je. Prvy krat sme Emmusku mohli vidiet az po par dnoch od narodenia. Mala 1600g, a vyzerala ako mala babika... Nemala saci reflex, takze ju krmili sondou. A takto nasa mamka a Emmka stravili v nemocnici 6 tyzdnov. V den navratu domov nasim lekari oznamili, ze Emmka ma tzv. Edwardsov syndrom a ze jej nedavaju velku nadej na prezitie. Uz to, ze prezila 6 tyzdnov,bol vraj zazrak.

A takto moji rodicia opustali nemocnicu.... S pocitom bezradnosti, nevedomosti, stipky velmi malej nadeje. Cas bezal, nasi to nevzdavali, otec pracoval kolko len mohol, mamka sa starala o Emmku 24/7 a pred par dnami nam Emmuska oslavovala 7 rokov. Zhrnut tychto nelahkych 7 rokov do par riadkov je velmi narocne,no laska a starostlivost mojich rodicov o Emmusku je nekonecna.

Momentalne ma Emmka viacero diagnoz a lieci sa na, tychto oddeleniach:

Kardiologicke- ma dierku na srdiecku, je zle ulozene v hrudi.
Imunoalerg.:znizena imunita.
Gastroenter.: jedava len mixovanu stravu, nemliecnu, zalozenu na soji, kvoli zlemu traveniu, a problemami s vylucovanim- vylucovanie jej musi mamka vyvolat kazdy druhy den- niekedy to trva aj pol dna kym sa Emmka uspesne vykaka.
Ocne: strabizmus
Neurol.: Edwardsov syndrom, psychomotoricka retardacia

Emmka ma nespravnu orientaciu, je leziaca, krmena mixovanou stravou a je plienkovana.



Exactly 7 years ago my parents were expecting very wanted 3rd child. Me (19 that time) and my sister Simona (15 that time) were very excited about our little sister/brother coming to this world. We gave her/him a funny nickname 'Aladar' while she/he was in my mums bump.

Whole pregnancy was without any issues,until 7th month of pregnancy, when doctor said to my mum she has too much water in her body and she was in high risk pregnancy. In the 37th week of pregnancy doctors made an examination and they had to do emergency C-section. We were all very happy our little angle was born...

After birth there were complications. Doctors said to us that Emma has some problem with her heart, then they said she had some stomach problems. Every few hours they were coming with new diagnoses, but they didn't know what was wrong...First time we could see Emma was few days after birth. She looked like a little doll, she was only 1600g... She wasn't able to suck, so they had to feed her by 'Sonda'. My mum and Emma had to stay in hospital for over 6 weeks. On the last day doctors diagnosed to Emma- EDWARDS SYNDROME. They said she does't have big chances to live....Even 6 weeks were apparently miracle...

On the day when my parents were leaving the hospital, they felt very unsure, worried, they had just a hope. But they never gave up! My father was and he still is working a lot and my mum is looking after Emma 24/7. Few days ago Emma was celebrating her 7th B-day! To write here all her life story is very difficult but love of my parents and whole family is never-ending....

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